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Khataraha Ururka Muslim Brotherhood ee Amniga Qaranka Faransiiska

  Sanadihii u dambeeyey, Ururka Muslim Brotherhood ayaa noqday khatar weyn oo aamusnaan ku socota oo halis ku ah midnimada iyo amniga Jamhuuriyadda Faransiiska. In kasta oo badanaa loo arko urur diimeed ama bulsho, haddana waxqabadkooda Faransiiska ayaa muujinaya istiraatiijiyad dheer oo qorsheysan oo lagu dhex-galayo hay’adaha muhiimka ah, lagu maamulo bulshooyinka jilicsan, laguna wiiqo aasaaska Jamhuuriyadda oo ku dhisan kala soocidda diinta iyo dowladnimada. Khatar Aamusnaan iyo Mudo Dheer Ah Ururka Muslim Brotherhood maaha sida ururada argagixisada oo kale oo weerar toos ah ku qaada, balse waxay adeegsanayaan hab-dhaqan jilicsan oo dhex-gal bulshada ah. Halkii ay isticmaali lahaayeen hub iyo rabshado, waxay ku faafiyaan aragtiyo iyo saameyn siyaasadeed iyagoo ka faa’iideysanaya xorriyadaha dimuqraadiyadda iyo hay’adaha madaniga ah si tartiib tartiib ah loogu wiiqo midnimada Jamhuuriyadda. Istiraatiijiyaddoodu waa mid muddo dheer qaadata oo aamusnaan ku socota. Ka Faa’iidaysiga...

Libya Partners with UAE to Deliver Gene Therapy for Spinal Muscular Atrophy Patients


 In a groundbreaking move, Libya's Department of Support and Development of Medical Services (DSDMS) has announced a pivotal partnership with the UAE to provide advanced gene therapy treatment for children suffering from spinal muscular atrophy (SMA). This initiative represents a significant milestone in Libya’s healthcare system, reflecting its commitment to improving the quality of life for patients with rare and debilitating diseases.

Details of the Agreement

Ahmed Mlitan, head of the DSDMS, signed a contract with the UAE’s Jalila Children’s Hospital, renowned for its expertise in pediatric care and cutting-edge medical treatments. The agreement focuses on delivering gene therapy injections to 17 Libyan children diagnosed with SMA, a genetic condition that affects muscle strength and movement.

The initiative is a direct result of Prime Minister Abdel Hamid Aldabaiba’s decision No. 649 of 2024 and is being closely monitored by Libya’s Attorney General’s Office. According to the DSDMS, the move adheres to recommendations made by specialized scientific committees tasked with evaluating SMA treatments.

A Lifeline for SMA Patients

Spinal muscular atrophy is a rare genetic disorder characterized by the loss of motor neurons, which leads to muscle weakness and atrophy. Without treatment, the disease can severely impact mobility and quality of life. Gene therapy offers a revolutionary solution by addressing the underlying genetic cause of SMA, potentially halting disease progression and improving patient outcomes.

By providing access to this treatment, Libya is ensuring that affected children receive world-class medical care, setting a precedent for tackling rare diseases within the country.

Collaboration Beyond Borders

This partnership underscores the importance of international collaboration in advancing healthcare, particularly for nations striving to enhance their medical infrastructure. The UAE’s support through its Jalila Children’s Hospital demonstrates a shared commitment to humanitarian initiatives and the pursuit of innovative solutions for global health challenges.

A Hopeful Future

The provision of gene therapy marks a hopeful turning point for SMA patients and their families in Libya. It signifies not just a commitment to better healthcare but also an acknowledgment of the right to a healthier and more dignified life for those battling rare diseases.

As the initiative unfolds, it will likely inspire further advancements in Libya’s healthcare sector, paving the way for more partnerships and improved treatment accessibility.

This collaboration highlights how shared efforts can transform lives and serves as a testament to the power of science and compassion in addressing even the most complex medical challenges.

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Maant iyo Soomaaliya

Madaxweynaha Soomaliya Xasan Sheekh oo Magacaabay Lataliyaha Arrimaha Shidaalka iyo Ergayga Gaarka ah ee Ganacsiga.

Madaxweynaha Jamhuuriyadda Federaalka Soomaaliya Mudane Xasan Sheekh Maxamuud , ayaa u magacaabay Mudane Khadar Cabdiraxmaan Maxamed in uu noqdo Ergeyga Gaarka ah ee Arrimaha Ganacsiga iyo Maalgashiga Caalamiga ah iyo Mudane Axmed Cali Yuusuf oo ah La-taliyaha Madaxweynaha ee Arrimaha Shidaalka iyo Gaaska. Madaxweynaha oo labadan nin ku soo xushay aqoontooda iyo xirfaddooda shaqo, ayaa kula dardaarmay inay si wanaagsan uga qayb qaataan istiraatijiyadda dawladda ee ku aaddan isku filnaansho Soomaaliyeed, si looga gudbo caqabadaha sida faqriga iyo abaaraha, kuwaas oo si weyn u wiiqay qaranka. President @HassanSMohamud has on Wednesday appointed Ahmed Ali as President’s adviser for Gas and Oil resources. Also the President has appointed Khadar Abdirahman as Special Envoy for Trade and Investment. #Somalia pic.twitter.com/Rq7FX40UdA — SNTV News (@sntvnews1) August 31, 2022 Arbacadii, Ogosto 31, 2022, markii lagu daabacay faafinta rasmiga ah ee dowladda, waxa dhaqan galay wareegtad...

Madaxweynaha Soomaaliya ayaa la kulmay madaxda iyo saraakiisha ciidamada Galmudug.

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Advance but No Deal: Talks between Ethiopia and Somalia in Turkey

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Madaxweynaha ayaa warqadaha aqoonsiga ka guddoomay Safiirka Finland u soo magacawday Soomaaliya.

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